Thursday, August 4, 2016

Cerebral Palsy Definition

Cerebral palsy is a term used to describe a collection of disorders caused by abnormal brain development or damage to the brain that occurs around the time of birth or early in life.
Cerebral palsy causes problems with muscle tone, movement, balance and/or coordination. Symptoms and effects range from mild to severe. In some infants, problems are evident soon after birth. In others, diagnosis comes in later infancy or toddlerhood.

Cerebral Palsy Types

There are many ways to classify cerebral palsy. When describing the type of movement impairment, providers often talk about spastic and mixed cerebral palsy.

Spastic Cerebral Palsy

Spastic cerebral palsy is characterized by increased muscle tone. Muscles are unusually tight and stiff, which affects movement and growth. Spastic cerebral palsy is often associated with damage to or developmental differences in the part of the brain called the cerebral cortex. Spastic cerebral palsy encompasses approximately 80 percent of all cases of cerebral palsy.
There are three main types of spastic cerebral palsy—each affecting different areas of the body:
  • Diplegia affects the legs more than the arms. This type of cerebral palsy is most common in premature babies.
  • Hemiplegia affects one side of the body. This type of cerebral palsy is most common in babies who’ve experienced strokes or traumatic brain injuries.
  • Quadriplegia affects the entire body—the legs and the arms. This type of cerebral palsy is most common in babies who experience a lack of oxygen.

Mixed Presentation

Mixed cerebral palsy describes people who experience features of both spastic and dyskinetic cerebral palsy. This type of cerebral palsy is associated with damage to multiple areas of the brain.

Wednesday, June 22, 2016

COMPUTER TECHNOLOGY AND AUTISM

Computer aided teaching


The choice of activities and exercises, adapted to the level of acquisition and emerging abilities, will depend on the assessment. It is these exercises which will have to be integrated into a computer programme. A great many exercises, which are well adapted to the specificities of the autist's learning difficulties, already exist.
Computerization of some of these exercises could be quite easily undertaken. One could also look at existing educational computer programmes for exercises, which although not specifically developed for autistic people, could very well be of an appropriate level and which do not, above all, present any disconcerting characteristics for autistic people. It is, moreover, in this category that the highest number of computer experiments may be found. Finally, teachers could also invent new exercises which make specific use of the progressive animation and integration capacities of several of the new tool's sensorial modes.
To this end, writing aids for educational programmes have been developed which may either assist in the creation of new programmes or in enhanced personalization of educational programmes. Consideration and examination of the progress made in understanding autism will be extremely important, ensuring that educational programmes are fully adapted to the specificities of this syndrome.
In a more targeted approach to the possibilities provided in the field of educational programmes, one may, in relation with the WHO's classification of handicaps: Deficiency, Disability and Handicap, submitted by Wood in 1980 distinguish three levels of intervention:
  • interventions which aim to reduce the "deficiency", that is to say which involve cerebral plasticity;
  • interventions which aim to compensate the "disability" by offering standard learning exercises which have been adapted to the specificities of autism; and finally,
  • interventions involving the handicap itself, that is to say which aim at developing social skills, thereby enabling better social integration. It is evident that regarding the current status of the research into the causes of autism, the first type of educational programme, which aims at acting on one or several specific deficiencies encountering in autism, is only in its infancy.
In contrast to this, however, several experiments involving computer aided teaching in the second area would appear to show encouraging results. It is very important to remember the autistic person's difficulties with memorization, sensorial integration, attention span and generalization which have been highlighted by recent research into this disorder.
As far as exercises which promote socialization are concerned, fairly good educational programmes are now available. Here again, the "Multimedia" technology ought to enable exercises to be offered which more closely match real (social) situations.

Assistance in communication

Up to now, computer technology has above all been used as a communications aid in cases of cerebral motory disabilities. Depending on the brain damaged person's motory and intellectual abilities, various communications systems based on a pointing method using pictures, symbols or even words displayed on a screen, enable a level of communication which considerably increases the person's autonomy.
This type of use with non verbal autistic people or those experiencing difficulties in expressing themselves verbally has been experimented with by various specialists. This may involve pointing systems using drawings or symbols, similar to the communication cards already used by a number of autistic people to communicate with their entourage. By combining the principle of card communication with the possibilities provided by computers, new fields of application will be developed. For instance, voice synthesis which enables easier communication with an interlocutor or the system of unfolding pictures.
For some autistic people, who do manage to learn to read and write, communication using a computer keyboard or reception using a visual document, either displayed on a computer screen or printed up, could be easier than verbal communication or reception, especially due to the marked preference shown by a high number of autistic people for visual stimuli but also because of the permanence of visual stimuli compared with the transitory nature of auditory stimuli. However, great care is called for in this area in view of certain overly optimistic views linked to the use of a technique known as "Facilitated Communication".
Information technologies can indeed facilitate communication in a more general manner, in particularly via computer networks. This kind of infrastructure could indeed constitute a potentially very powerful and rapid source of information exchanges, for instance the "INTERNET" network."INTERNET" links up several computer networks worldwide, with these being mainly used by universities.
An Electronic Mailing List particularly devoted to autism has already been set up, in which professionals, parents of autistic people and autistic people capable of using a computer keyboard can take part. Other discussions devoted to autism have emerged in discussion groups of a more general nature, called NEWSGROUPS, which operate within the USENET network. A great number of other subjects concerning psychiatry are dealt with by these networks. Some discussions are open to a wide public: professionals and non professionals alike rub shoulders, which can occasionally be irritating for some but is often a very interesting experience. Other discussions are only open to specialists, with access being controlled by the specialists themselves.

The research models

I do not wish to consider the use of computers and computer technology to be found in most medical research laboratories: this is a tool for statistical analysis, graphical representation, signal processing, etc... I am thinking more of computer technology which, by modifying one or several parameters, is able to describe and analyse certain brain activity. In some cases, the computer model can even simulate this activity, thereby providing scientists with an experimental field previously not available to them for obvious ethical reasons. Recent developments in symbolic Artificial Intelligence and the exploration work carried out in the field of so called "neuronal" computers, sometimes also known as connectionist systems, have provided neuro psychologists and neuro-biologists with exploration models, enabling them to test their hypotheses. Indeed, I am of the opinion that this could be an area of profitable cooperation between scientists working in the field of autism and those doing research on Artificial Intelligence.
The latter find themselves confronted by the "pathologies" of their artificial systems: learning difficulties, rigid behaviour patterns, the near impossibility of making generalizations based on previous experience and above all the difficulty of integrating several outside stimulus at the same time. There is no doubt that, as already mentioned earlier, this will involve working in an area in which some will be able to rediscover with pleasure their fascination for the world of computer technology.

Practical implementations

Although some years ago one of the main obstacles to the implementation of computer aided educational programmes was the price of the equipment, this aspect has now become a secondary consideration. Indeed, first rate computer hardware/software can be bought at very reasonable prices. The difficulties encountered are of two kinds:
  • human difficulties,
  • technical difficulties.
But new wine must be put into new bottles. It is, indeed, much easier to quote this saying from the Bible than to put it into actual practice. The use of computer technology may require changes in the care, whether therapeutic or educational, afforded autistic people. Such changes must be prepared. The resistance which this technology may give rise to will have to be considered: "It doesn't work, it's useless. We are going to make our children in robots, they will become prisoners of mechanical behaviour, etc..."
In the first part of my paper, I dealt with the importance of only considering the computer as a useful aid in caring for autistic people and not as a finality in itself. This at least partly answers some of the fears expressed. As far as the computer aided programmes lack of efficiency is concerned, it is difficult to be convincing by opposing theoretical arguments. It is far better to promote exchanges with teams who have already gained experience in this field.
This leads me to talk about another prerequisite for implementation of computer technology and above all the necessary adjustments to be made during use. It is important that the various teams, who have decided to adopt computer technology, are given the opportunity of frequent and practical communication between themselves. This will then lead up to the second area of difficulties, those which concern the technical aspect. To promote such exchanges, communication tools, like those already mentioned in the first section, will have to be set up. Although communication networks, such as INTERNET, exist more or less worldwide and the equipment required for writing and reading messages has become considerably cheaper, there are not very many access points, at least not outside the USA.
As an illustration, there are more than ten million people linked to INTERNET in the USA and less than 500,000 for all of Europe. Since it is above all universities and scientists who use these networks, the USA's lead over the rest of the field can be appreciated.

Looking for suitable Programmes

To return to the more immediate implementation of computer aided solutions, especially within the field of computer aided teaching, one will have to look and see which existing programmes are most suited to the person's learning abilities. This is not a particularly easy task. There is no general list classifying education or recreational computer programmes on the basis of their cognitive level.
One must not forget to examine non specialized programmes, whether this concerns educational programmes or games. The informed professional may very well find unexpected resources, which will no doubt require some adaptation and/or departure from the programme's original intention. Some games, for instance, can provide an opportunity for learning social skills: learning to play in turns for example. Computer simulation in a known environment can help the person to learn basic rules, frequently impossible in a real situation,...
Programmes known as utilities, such as word processing programmes or computer aided programmes for artistic creation are another source of assistance for the mentally handicapped and autistic people. The mentally handicapped people frequently have difficulty in executing a task such as writing or drawing. This does not involve a lack of artistic ability but rather difficulties linked to disorders accompanying their handicap, motory problems, precise coordination, slowness, etc.
An interesting aspect of computer technology is that it accepts a certain degree of error. Word processing programmes enable typing errors to be corrected, some even correct spelling mistakes. Computer aided graphics programmes allow the "painter" to go back over the drawing if it is not quite right. In both cases, one does not have to start again from scratch. This type of programme can be used to help a person tell a story, either with the use of the text or with the help of drawings or even both at once. This can be done individually or collectively. One may also envisage the same type of possibility with certain programmes specifically designed for musical creation.

Lack of Standardisation

Another difficulty resides in the lack of standardization of educational material and programmes. Once the first step involving the choice of programme suited to the needs of a particular person has been reached and even taken, the programme will then have to have been rewritten for the educational team's specific type of equipment. Nonetheless, there are some excellent suppliers of educational programmes which operate with several types of computers. These are unfortunately too few and far between.
A number of programmes are poorly suited to the specific needs of people with learning difficulties, especially autistic people. Some are written by experts in specialized teaching and are thus very good from the didactic point of view but their technical qualities are often not up to scratch: insufficiently reliable, insufficiently flexible, laborious implementation, etc. Other programmes have been written by computer scientists which, despite evident good will and obvious computer skills, have only been able to create programmes with generally fairly limited teaching qualities. There is a crying need for coordination between the two groups. Beyond these two specialties and in light of the complexity of the group of people for whom these programmes are developed, it would be good if multi disciplinary teams, including teachers, psychologists, neurologists, psychiatrists, as well as cognitive specialists and occupational therapists took part in the development of educational programmes. As a step in this direction, the following associations: Autisme France, Autisme Europe, the ARAPI and the UNAPEI have organized, in conjunction with IBM France's computer centre and services to the handicapped, France Telcom, an international conference on the subject of Autism and Computer Technology, which brought together specialists from various fields. This conference was held in Nice (France) at the ACROPOLIS in January 1995.
The five themes, mentioned earlier, have been presented:
  • DIAGNOSIS
  • ASSESSMENT
  • TEACHING
  • COMMUNICATION
  • RESEARCH MODELS
We hope that this conference has provided the opportunity of establishing links between the various teams interested in the application of computer technology in the field of autism. I, for my part, am convinced that by considering the specific needs of autistic people and by using the appropriate computer techniques to meet these needs, we shall provide important assistance to the cognitive and social development of autistic people.

Monday, February 29, 2016

Impairment, Disability and Handicap


The words “impairment,” “disability,” and “handicap,” are often used interchangeably.  They have very different meanings, however.  The differences in meaning are important for understanding the effects of neurological injury on development.

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The most commonly cited definitions are those provided by the World Health Organization (1980) in The International Classification of Impairments, Disabilities, and Handicaps:

Impairment

Any loss or abnormality of psychological, physiological or anatomical structure or function.

Disability

 Any restriction or lack (resulting from an impairment) of ability to perform an activity in the manner or within the range considered normal for a human being.

Handicap:

A disadvantage for a given individual that limits or prevents the fulfillment of a role that is normal

As traditionally used, impairment refers to a problem with a structure or organ of the body; disability is a functional limitation with regard to a particular activity; and handicap refers to a disadvantage in filling a role in life relative to a peer group.

Examples to illustrate the differences among the terms "impairment," "disability," and "handicap."

1.  CP example:  David is a 4-yr.-old who has a form of cerebral palsy (CP) called spastic diplegia.  David's CP causes his legs to be stiff, tight, and difficult to move.  He cannot stand or walk.


Impairment:


 The inability to move the legs easily at the joints and inability to bear weight on the feet is an impairment.  Without orthotics and surgery to release abnormally contracted muscles, David's level of impairment may increase as imbalanced muscle contraction over a period of time can cause hip dislocation and deformed bone growth.  No treatment may be currently available to lessen David's impairment.


Disability:


 David's inability to walk is a disability.  His level of disability can be improved with physical therapy and special equipment.  For example, if he learns to use a walker, with braces, his level of disability will improve considerably.

Handicap:


 David's cerebral palsy is handicapping to the extent that it prevents him from fulfilling a normal role at home, in preschool, and in the community.  His level of handicap has been only very mild in the early years as he has been well-supported to be able to play with other children, interact normally with family members and participate fully in family and community activities.  As he gets older, his handicap will increase where certain sports and physical activities are considered "normal" activities for children of the same age.  He has little handicap in his preschool classroom, though he needs some assistance to move about the classroom and from one activity to another outside the classroom.  Appropriate services and equipment can reduce the extent to which cerebral palsy prevents David from fulfilling a normal role in the home, school and community as he grows.

2.  LD example:  Cindy is an 8-year-old who has extreme difficulty with reading (severe dyslexia).  She has good vision and hearing and scores well on tests of intelligence.  She went to an excellent preschool and several different special reading programs have been tried since early in kindergarten.

Impairment:  

While no brain injury or malformation has been identified, some impairment is presumed to exist in how Cindy's brain puts together visual and auditory information.  The impairment may be inability to associate sounds with symbols, for example.

Disability:  

 In Cindy's case, the inability to read is a disability.  The disability can probably be improved by trying different teaching methods and using those that seem most effective with Cindy.  If the impairment can be explained, it may be possible to dramatically improve the disability by using a method of teaching that does not require skills that are impaired (That is, if the difficulty involves learning sounds for letters, a sight-reading approach can improve her level of disability).

Handicap:  

Cindy already experiences a handicap as compared with other children in her class at school, and she may fail third grade.   Her condition will become more handicapping as she gets older if an effective approach is not found to improve her reading or to teach her to compensate for her reading difficulties.  Even if the level of disability stays severe (that is, she never learns to read well), this will be less handicapping if she learns to tape lectures and "read" books on audiotapes.  Using such approaches, even in elementary school, can prevent her reading disability from interfering with her progress in other academic areas (increasing her handicap).

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